(Multiple Sclerosis) Well the story is about me, about a year and a half ago, I was having trouble walking, I kept walking to the right, and I had a lot of weakness in my right side, my head felt like it was swimming, I went to the Dr's and they did an MRI, they admitted me and said they weren't sure but they thought that it was MS< so when I came home from the hospital it just got worse, so finally they decided to do a spinal tap. so when they got the spinal tap done, they confirmed that it was MS, so they put me on 3 days of High Dose Solumedrol. at that time I had only one lesion, now a year and a half later, after numerous trips to the hospital. I have 5 lesions,
3 on my brain and two on my spinal cord, Recently My Dr. has taken me out of work, so therefore at the end of this month I (April) I will no longer have insurance. so therefore I don't know how I am going to continue to see my neurologist. and I also am on 5 different prescriptions, and I also have to go to the Dr's. once a month to receive a Tysabri Infusion, and I don't know how I am going to pay for it, I have applied for Social Security Disability , but from what I understand that could be a long process. so without my income, it is going to be very stressful trying to make ends meet on just my husband income, I wish there was a law that would allow people with MS to automatically be eligible for Disability and Medicaid, I did work for a year and a half and got to the point that I couldn't do it anymore, I have worked all my life, and now I have to wait for someone at disability to make a decision, I don't think it's fair,
in the meantime, I will lose everything I have. |
