Status Epilepticus

Status Epilepticus

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My daughter is two and a half years old. When she was born, she suffered two strokes that caused quite a bit of damage. Now she has epilepsy and this story is about August 11, 2007 and her diagnosis of status epilepticus.

It had been over two years since my daughter had gone through her health problems. We were still dealing with the aftermath of the strokes; her epilepsy, right sided weakness, learning delay and speech problems but we felt like we had a hold on things.

One day she was finger painting and I was out on the patio watching her through the screen door. I watched the back of her head suddenly droop over and her cousin who was inside with her asked what was wrong with her as I came running in. When I picked her up she was dead weight, her body felt different then when I carried her up from the car when she was sleeping and her eyes rolled to the corner and were fixed there. She looked like she may have been having a seizure but something was different. I yelled for my mother to call 911 and when they arrived she was turning blue. I was screaming and crying hysterically and trying not to go into labor (I was one week from my due date with her little sister), and they quickly loaded us up into the ambulance.
It had been about 30 minutes since she went into this and she still wasn't responding in any way other than breathing with a tube. At the hospital her stats kept dropping and she still hadn't come out of it after 3 different kinds of seizure medication but they still assured us it was a seizure and just didn't know why she wasn't coming out of it (seizures last 1-2 minutes tops). Four hours had gone by and she was still alive but her stats kept dropping and she hadn't come out of the seizure. I had never heard of a seizure that could kill someone but apparently there is one; Status epilepticus, was the diagnosis that was given to her after she was seizing for five hours and they had finally stopped it. She was lucky to be alive once again.

Tags:

status-epilepticus, epilepsy, infant-stroke, pediatric-stroke

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Shannymar

1 Year, 2 Weeks, 6 days, 10 hours, 17 minutes ago

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