What you should know about me and all Lupies II

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What you should know about me and all Lupies II

MY STRESS - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. I may very well be overwhelmed with stress. Everyday stresses make my symptoms worse and can incapacitate me completely.

MY WEIGHT - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My ability to control my appetite is broken, and nobody can tell me how to fix it.

MY NEED FOR THERAPY - If I get a massage every week, don't envy me. My massage is not your massage. Consider how a massage would feel if that charlie horse you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is knot- filled. If I can stand the pain, regular massage can help, at least temporarily.

MY GOOD DAYS - If you see me smiling and functioning normally, don't assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days, weeks, or even months. In fact, the good days are what keep me going.

MY UNIQUENESS - Even those who suffer from chronic pain are not alike. That means I may not have all of the problems mentioned above. I do have pain above, below the waist, and on both sides of my body that has lasted for a very long time. I may have migraines, hip pain or shoulder pain, or knee pain, but I do not have exactly the same pain as anyone else.

I hope that this helps you understand me, I have shared these thoughts with many "Lupies", as we call ourselves, and they agree with me.

So when you see someone at the store who gets out of the HANDICAPPED space and they look fine -- DO NOT JUDGE THEM as YOU may Not know THEIR Inner PAIN.

Tags:

lupus, stress, obesity

Posted By:

Signhild

1 Year, 2 months, 1 Week, 1 hour, 56 minutes ago

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