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I was born with a condition called Congenital Rubella Syndrome. Basically my mom got the Measles while she was pregnant with me back in the Rubella Epidemic days. It left me totally blind at birth, but then over time they were able to restore partial vision with needling type operations, but left me with euphakia, microcornea, and nystagmus.

The eye doctor tried lazer treatments to restore more partial sight, but the lazers gave me glaucoma over time, and now the glaucoma is deteriorating the optic nerve. All we can hope for, is the glaucoma eye drops maintain what little eyesight I have left.

unfortunately, these eye drops for glaucoma are very expensive. I lost my job after 8 years of employment, because the glaucoma took too much of my sight to be able to continue to perform my job duties. Plus my work got nervous when I started carrying a white cane to work with me.

So I have no insurance whatsoever right now. I am in the middle of applying for Social Security Disability, and Medicaid, but they say it may take 2 years to start getting either Medicare or Medicaid, and I don't know what their prescription drug coverage is like.

In the meantime, Vocational Rehabilitation, has been getting me blind training, and sending me back to college, so I can find a job that I can do rather I have vision or not, but it'll take me 4 years to graduate, so in the meantime, I am on all these different prescription drugs for glaucoma, and Crohns Disease, which are very expensive, so I could really use some help with these medicines, at least until I hear from Social Security, and even then there is still no guarantees because they keep trying to tell me my wife makes too much money, when she only has a $9 an hour job, when her income goes towards car, car insurance, her unemployed youngest daughters expenses, so they won't help me, expecting my wife to, when she has to take care of her daughter first. Its not fair.
Tags: crohns, indiana
Posted By: tcoburn Posted 2 Years, 11 months, 3 days ago
All Votes: 18
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